Project Shui for Tay-Sachs

Genetics Made Fun              
Below are some videos that make the understanding of Lysosomes and Lysosomal Storage Diseases a little more fun.  They were found on YouTube.  

*Video or Pictures of Tay-Sachs

Project Shui Home Page

Welcome From Shui
   How Close are we to a Cure?
   *Rachaeli's Friends
   Sign up for Updates
*Bar Mitzvah Video Invite
What is Project Shui?

Thank You From Shui
   Internet Ads&Marketing

What is Shavuot?
Shavuot & Shui's Sister

What is Tay-Sachs?
Tay-Sachs Diagnosis:

      Part I

      Part II

   Genetics Made Fun
      *Lysosomes The Movie
      *Genetics 101 Video
Narrated by Alec Baldwin
   Genetics 101 Article

*Inspirational Videos

*Beautiful Faces of Lysosomal

*Tay-Sachs Talk
   *Connor Hopf Cure Tay-Sachs
   *2010 Faces of Tay-Sachs
*My Soul Sister-Molly Grace
*Our Star Dakota
   *Rachaeli's Song of Love
   *Elise-A Child Living with Tay-Sachs
   *Last Laugh
   *Meet Gavin

Tay-Sachs in the Media
Glee Sectionals
   *Grey's Anatomy Sweet Surrender
   *Law & Order SVU MERCY
21 Below Documentary
Legal & Financial Issues

   What is Wrongful Life?
   Right to Live in the United Kingdom
   How to Pay Medical Bills?
   Social Security Disability
   CHIPRA-Insurance for Kids
   Medicaid Waiver Programs
   Katie Beckett Medicaid
   Who is Katie Beckett?
 Why We Need Katie Beckett Waiver?

Eligibility for Katie Beckett
   Katie Beckett in Georgia
Katie Beckett's Going Home
   (from People Magazine 1981)

Treatment or Cure
Canavan Pioneers
   *Gene Therapy
   Jacob Sheep Sensation
   Article in Forward-Jacob Sheep
   *Stem Cell Transplants
   Enzyme Replacement
   Substrate Inhibitors
   Should I Try Zavesca?
   Letter for Insurance 
      Approval for Zavesca
   Chaperone Therapy

In-Home Medical Care
Home Health Care
   Coping Strategies
Coping with Humor w/ Shui's Dad
Rachaeli's Story
Shocked by Tay-Sachs Article
The Project Shui Family
Mommy's Online Journal
   Abba's Online Journal
   Shui's Fun Pages


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Lysosomes the Movie
feat Patrick Stump& Frank Iero

lilwave123  January 02, 2009 — I made this for my Biology class, got a AAAB (D:) cause I "turned it in late" no you took it late. I figured someone could use it if hey need help on learning about the cell organelle Lysosome. Hey, even rate it if you want, if you think I should have gotten an AAAA :D
Music: Motion City Soundtrack, The Future Freaks Me Out
Category: Education

Genetics 101 
Narrated by Alec Baldwin 

EmpaxNYC —January 25, 2010The Hide and Seek Foundation commissioned Empax to tell the story of their organization in an interactive way. Empax assessed all the complicated, lengthy, jargon-filled research that supports the organization and its mission, and was able to streamline their message into a concise, animated short. Narrated by Alec Baldwin, Genetics 101 conveys the essence of the work of the Hide and Seek Foundation to any audience. —

Category: People & Blogs


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