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Project Shui
for Tay-Sachs
The Project Shui Family
Project Shui Daddy
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Project Shui Big Bro
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Big Bro Bar Mitzvah Video
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Project Shui Lil' Bro
- Project Shuimomma
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Mommy's Online Journal
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Abba's Online Journal
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Shui Fun Pages
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Contents
*Video or Pictures of Tay-Sachs
Project Shui Home Page
*
Welcome From Shui
What is the Cure Tay-Sachs Foundation?
How Close are we to a Cure?
*Rachaeli's Friends
Sign up for Updates
*
Bar Mitzvah Video Invite
What is Project Shui?
Thank You From Shui
Internet Ads&Marketing
What is Shavuot?
Shavuot & Shui's Sister
What is Tay-Sachs?
Tay-Sachs Diagnosis:
Part I
Part II
Genetics Made Fun
*
Lysosomes The Movie
*
Genetics 101 Video
Narrated by Alec Baldwin
Genetics 101 Article
*Inspirational Videos
*
Beautiful Face
s of Lysosomal
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Tay-Sachs Talk
*
Connor Hopf
Cure Tay-Sachs
*
2010 Faces
of
Tay-Sachs
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My Soul Sister-Molly Grace
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Our Star Dakota
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Rachaeli's Song of Love
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Elise-A Child Living with Tay-Sachs
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Last Laugh
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Meet Gavin
Tay-Sachs in the Media
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Glee
Sectionals
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Grey's Anatomy
Sweet Surrender
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Law & Order SVU
MERCY
*
21 Below
Documentary
Legal & Financial Issues
What is Wrongful Life?
Right to Live in the United Kingdom
How to Pay
Medical Bills?
Social Security Disability
CHIPRA
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Insurance for Kids
Medicaid Waiver Programs
Katie Beckett Medicaid
Who is Katie Beckett?
Why Do We Need The
Katie
Beckett Waiver?
Eligibility
for
Katie Beckett
Katie Beckett
in Georgia
Katie Beckett
's
Going Home
(
from
People
Magazine 1981)
Treatment or Cure
Canavan Pioneers
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Gene Therapy
Jacob Sheep Sensation
Article in Forward-Jacob Sheep
*
Stem Cell Transplants
Enzyme Replacement
Substrate Inhibitors
Should I Try Zavesca?
Letter for Insurance
Approval for Zavesca
Chaperone Therapy
In-Home Medical Care
Home Health Care
Respiratory/Secretions
Coping Strategies
Coping with Humor
w/ Shui's Dad
Rachaeli's Story
Shocked by Tay-Sachs Article
The Project Shui Family
Mommy's Online Journal
Abba's Online Journal
Shui's Fun Pages
Guestbook
Sitemap
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Project Shui
Lil' Bro
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Project Shui Lil' Bro on his Ripstick
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Project Shui Lil' Bro
on Purim
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Project Shui Daddy
doing stand up comedy
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Project Shui Big Bro
on his Israel Tour
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Project Shui Big Bro's Bar Mitzvah Video
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Project Shuimomma
Living on an Exit Ramp:
A mother of a girl with Tay-Sachs disease
delivers a Bar Mitzvah speech to
her healthy, 13-year-old son.