Rachaeli's "Song of Love" Music Video
Contents
*Video or Pictures of Tay-Sachs
Project Shui Home Page
*Welcome From Shui
What is the Cure Tay-Sachs Foundation?
How Close are we to a Cure?
*Rachaeli's Friends
Sign up for Updates
*Bar Mitzvah Video Invite
What is Project Shui?
Thank You From Shui
Internet Ads&Marketing
What is Shavuot?
Shavuot & Shui's Sister
What is Tay-Sachs?
Tay-Sachs Diagnosis:
Part I
Part II
Genetics Made Fun
*Lysosomes The Movie
*Genetics 101 Video
Narrated by Alec Baldwin
Genetics 101 Article
*Inspirational Videos
*Beautiful Faces of Lysosomal
*Tay-Sachs Talk
*Connor Hopf Cure Tay-Sachs
*2010 Faces of Tay-Sachs
*My Soul Sister-Molly Grace
*Our Star Dakota
*Rachaeli's Song of Love
*Elise-A Child Living with Tay-Sachs
*Last Laugh
*Meet Gavin
Tay-Sachs in the Media
*Glee Sectionals
*Grey's Anatomy Sweet Surrender
*Law & Order SVU MERCY
*21 Below Documentary
Legal & Financial Issues
What is Wrongful Life?
Right to Live in the United Kingdom
How to Pay Medical Bills?
Social Security Disability
CHIPRA-Insurance for Kids
Medicaid Waiver Programs
Katie Beckett Medicaid
Who is Katie Beckett?
Why Do We Need The
Katie Beckett Waiver?
Eligibility for Katie Beckett
Katie Beckett in Georgia
Katie Beckett's Going Home
(from People Magazine 1981)
Treatment or Cure
Canavan Pioneers
*Gene Therapy
Jacob Sheep Sensation
Article in Forward-Jacob Sheep
*Stem Cell Transplants
Enzyme Replacement
Substrate Inhibitors
Should I Try Zavesca?
Letter for Insurance
Approval for Zavesca
Chaperone Therapy
In-Home Medical Care
Home Health Care
Respiratory/Secretions
Coping Strategies
Coping with Humor w/ Shui's Dad
Rachaeli's Story
Shocked by Tay-Sachs Article
The Project Shui Family
Mommy's Online Journal
Abba's Online Journal
Shui's Fun Pages
Guestbook
Sitemap
Return to Top
*Video or Pictures of Tay-Sachs
Project Shui Home Page
*Welcome From Shui
What is the Cure Tay-Sachs Foundation?
How Close are we to a Cure?
*Rachaeli's Friends
Sign up for Updates
*Bar Mitzvah Video Invite
What is Project Shui?
Thank You From Shui
Internet Ads&Marketing
What is Shavuot?
Shavuot & Shui's Sister
What is Tay-Sachs?
Tay-Sachs Diagnosis:
Part I
Part II
Genetics Made Fun
*Lysosomes The Movie
*Genetics 101 Video
Narrated by Alec Baldwin
Genetics 101 Article
*Inspirational Videos
*Beautiful Faces of Lysosomal
*Tay-Sachs Talk
*Connor Hopf Cure Tay-Sachs
*2010 Faces of Tay-Sachs
*My Soul Sister-Molly Grace
*Our Star Dakota
*Rachaeli's Song of Love
*Elise-A Child Living with Tay-Sachs
*Last Laugh
*Meet Gavin
Tay-Sachs in the Media
*Glee Sectionals
*Grey's Anatomy Sweet Surrender
*Law & Order SVU MERCY
*21 Below Documentary
Legal & Financial Issues
What is Wrongful Life?
Right to Live in the United Kingdom
How to Pay Medical Bills?
Social Security Disability
CHIPRA-Insurance for Kids
Medicaid Waiver Programs
Katie Beckett Medicaid
Who is Katie Beckett?
Why Do We Need The
Katie Beckett Waiver?
Eligibility for Katie Beckett
Katie Beckett in Georgia
Katie Beckett's Going Home
(from People Magazine 1981)
Treatment or Cure
Canavan Pioneers
*Gene Therapy
Jacob Sheep Sensation
Article in Forward-Jacob Sheep
*Stem Cell Transplants
Enzyme Replacement
Substrate Inhibitors
Should I Try Zavesca?
Letter for Insurance
Approval for Zavesca
Chaperone Therapy
In-Home Medical Care
Home Health Care
Respiratory/Secretions
Coping Strategies
Coping with Humor w/ Shui's Dad
Rachaeli's Story
Shocked by Tay-Sachs Article
The Project Shui Family
Mommy's Online Journal
Abba's Online Journal
Shui's Fun Pages
Guestbook
Sitemap
Return to Top
The song in this video was made for Rachaeli in 2004, shortly after her diagnosis or Tay-Sachs disease. Rachaeli and her family listened to it often, but at some point over the past six years, it was put away with other CDs. Rachaeli's mother uncovered the CD this July of 2010 and put this slide show together. We hope you enjoy it.
This song was made by the Songs of Love Foundation. Please check out their website: wwww.songsoflove.org.
The Songs of Love Foundation is a nonprofit organization dedicated to providing personalized songs for children and teens currently facing tough medical, physical or emotional challenges, free of charge.
