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 Project Shui for Tay-Sachs

What is Project Shui?

*Video or Pictures of Tay-Sachs

Project Shui Home Page

Welcome From Shui
   What is the Cure Tay-Sachs Foundation?
   How Close are we to a Cure?
   *Rachaeli's Friends
   Sign up for Updates
*Bar Mitzvah Video Invite
What is Project Shui?

Thank You From Shui
   Internet Ads&Marketing

What is Shavuot?
Shavuot & Shui's Sister

What is Tay-Sachs?
Tay-Sachs Diagnosis:

      Part I

      Part II

   Genetics Made Fun
      *Lysosomes The Movie
      *Genetics 101 Video
Narrated by Alec Baldwin
   Genetics 101 Article

*Inspirational Videos

*Beautiful Faces of Lysosomal
*Tay-Sachs Talk
   *Connor Hopf Cure Tay-Sachs
   *2010 Faces of Tay-Sachs
*My Soul Sister-Molly Grace
*Our Star Dakota
   *Rachaeli's Song of Love
   *Elise-A Child Living with Tay-Sachs
   *Last Laugh
   *Meet Gavin

Tay-Sachs in the Media
Glee Sectionals
   *Grey's Anatomy Sweet Surrender
   *Law & Order SVU MERCY
21 Below Documentary
Legal & Financial Issues

   What is Wrongful Life?
   Right to Live in the United Kingdom
   How to Pay Medical Bills?
   Social Security Disability
   CHIPRA-Insurance for Kids
   Medicaid Waiver Programs
   Katie Beckett Medicaid
   Who is Katie Beckett?
Why Do We Need The
Katie Beckett Waiver?
Eligibility for Katie Beckett
   Katie Beckett in Georgia
Katie Beckett's Going Home
   (from People Magazine 1981)

Treatment or Cure
Canavan Pioneers
   *Gene Therapy
   Jacob Sheep Sensation
   Article in Forward-Jacob Sheep
   *Stem Cell Transplants
   Enzyme Replacement
   Substrate Inhibitors
   Should I Try Zavesca?
   Letter for Insurance 
      Approval for Zavesca
   Chaperone Therapy

In-Home Medical Care
Home Health Care
   Coping Strategies
Coping with Humor w/ Shui's Dad
Rachaeli's Story
Shocked by Tay-Sachs Article
The Project Shui Family
Mommy's Online Journal
   Abba's Online Journal
   Shui's Fun Pages


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What is Project Shui? 
(Audio only)

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This following is a summary of the above audio:

How You Can Help Project Shui Without Spending a Dime

Project Shui is not just a Bar Mitzvah project.
It is not just a fund-raiser.
It is not just a cute way to raise awareness for Tay-Sachs disease.
It does not end on Shui's Bar Mitzvah.
It will be an ongoing project.  The website is not nearly complete and it will continue to be updated. 

One goal of Project Shui is to pass this website and its message along to as many people around the globe as possible.  Another goal is to raise as much money as possible for Tay-Sachs gene therapy research through direct donations.  A third goal is for the website to make money for the CTSF passively - through online advertising with Google Adwords, Kontera, and other advertisers that work with these two. 

Some ways you can help Project Shui reach these goals

1.  Link to your website and write a blurb about us on your site.

2.  Submit short articles to one or all of the numerous article-based websites (such as Ezine, Valuable Content...there are tons of them) and link to the article.  The topics of the articles can be directly related to Tay-Sachs or a critique of this project.  They can also be on any number of other topics such as parenting, education, developmental disabilities, childhood illnesses, therapy equipment, physical/occupational therapy, non-profit organizations, universal health care, Americans with Disabilities, death panels, medical breakthroughs, pharmacology, religion, psychosocial stressors... The list can go on and on. 

This is helpful because these article-based websites distribute their articles and their links.  The more links to our website the better our ranking will be for the best advertisements.  All the money brought in by advertisements will go to the Cure Tay-Sachs Foundation.

3.  Mention us on your blog and provide our link.

4.  Write about us on your online journal and include our link.

5.  Make a YouTube video about Tay-Sachs, Project Shui, or any of the topics listed in #2.  Include us in the video, as well as in the video's "keywords" and "description".  Then "share" your video with your friends on facebook, twitter, myspace, etc.

6.  Mention us on Facebook and send friends our link.

7.  Tweet about us on Twitter and provide our link.

8.  Send our webpage or our link to your friends, co-workers, neighbors, and other associates, and include a few kind words about us. 

9.  Write about Tay-Sachs or Project Shui on a HubPage or on StumbleUpon and link back to 

10.  If you have any other methods to transmit our message and our website, go for it!

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