Project Shui for Tay-Sachs


ConnorHopf-CureTay-Sachs

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Narrated by Alec Baldwin
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Conner Hopf
Tay-Sachs Video





Uploaded by  on Jan 13, 2009

Tay-Sachs

Category:

Education

Tags:

License:

Standard YouTube License




Comments from YouTube

  • this is very sad,my nephew have the same problem and see this video makes me feel more ill,God always takes the best...rip little angel....a hug to the family,from Italy...

  • This was so hard and yet so lovely to watch...they are really angels...My two brothers are angels as well...just be strong, I belive that some day cure for Tay&Sachs will be found...Your angel is in our hearts....

  • he's adoribly. im so srry you had to watch ur love go threw this. i send my love to ur family yall are in my prayes

  • what a beautiful little boy. what a horrible horrible disease. i hope a cure can be found soon to save these lives lost to these neurological diseases.

  • I cant stop crying

  • I am so sad that children have to go through such a horible disease.I pray for the families of these children and hope that they will find a cure soon.I have two children and can't imagine how heart breaking it is to find out that your child will not live to be an adult.I think that me and everyone else that has watched this video and have healthy children should feel very blessed and cherish there children for the miracle that they are.god bless you

  • I am so sorry for your loss, I can't imagine how hard this must have been. Poor baby... At least he is in a better place now

  • Thank you so much for sharing Connor's story, truly touching and heartbreaking. I hope that time heals your pain but never takes away the memories of him.

  • You were very lucky to have Conner in your lives. What a beautiful life you created, and thank God you had the strength to share his memory with us. I cry every time I watch your video. I first learned of Tay-Sachs last year in Child Development, and am going to share your touching video with my Psychology class to bring this disease to their attention. Although it was heartbreaking to go through this experience, it must be a true honor to know that you had him in your lives! :-)

  • Thank you so much for sharing your story of your prescious child. I am so sorry for your loss. I am doing a research project for my college biology class. I had not clue what Tay-Sachs was when it was assigned to me. Now I am forever changed by learning of this disease. With your blessing, I would like to use your video in my presentation. May time heal you.....


  • Thank you SO MUCH for refreshing my memories.

  • my heart goes out to you!!

  • I am doing a presentation on Tay-Sachs and was going to use this video as part of it, if you dont mind.

    I was given this disease as an assignment in my anatomy class.

    I had no clue what it was and my eyes have been opened so much just by researching it.

    I am sorry for your loss but happy that Connor's life is going to help lead the way to new discovery and hopefully a cure!

    God Bless ♥

  • I lost my only son, James Wyatt, to GM1 Ganglisidosis. My heart breaks for you and your family. Thank you for sharing your angel.

  • very very beautiful child... i'm so sorry. i only wish you could have had more time. it truly is ashame.

  • he is beautiful im sorry this happened to you.

    x x x x x x x

  • Great video Desiree. All of the picture of him are great!


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